Epidermolysis Bullosa, termed EB, encompasses a set of rare skin conditions that result in extreme skin fragility. A seemingly benign touch or minor friction can lead to blisters or tears. This susceptibility is traced back to a genetic mutation inherited from the parents, disrupting crucial skin-strengthening proteins.

Manifestations of EB

EB manifests variably among patients. While easily blistering skin remains its trademark, other symptoms include:

• Hand and foot blisters.
• Progressive skin thickening.
• Changes in nail and skin hue.

Yet, these physical manifestations are just the tip of the iceberg. The emotional and psychological impact on children and families is profound, making support structures indispensable.

Our Pledge to EB Children

Children R Future is deeply committed to these children. Our multifaceted support strategy entails:

• Supplying ointments, bandages, and dressings for wound care.
• Assisting in protein-centric food preparations tailored for them.
• Offering nutritional supplements and sedatives, ensuring optimal nutrition and restful sleep.
• Dental interventions to protect affected lips and teeth.

Moreover, we recognize the severe complications EB can lead to. Our medical support extends to deteriorating gums, stomach ulcers, and necessary surgeries on fingers, toes, or eyes.